Today’s prompt: Listen to “You are loved/Don’t give up” by Josh Groban. How does it make you feel? Which lyrics do you find inspiring?
Don’t give up
Because you want to burn bright
If darkness blinds you
I will shine to guide you
These lyrics stood out because they reminded me of a comment made by one of my professors. He said that some of the best therapists are “wounded healers” who have walked the path before and know the way out. That’s a good description of an advocate, too.
I think my responsibility as an advocate is to shine a light for others to follow. I’ve been down that dark path. If other migraineurs hadn’t led the way, saying “Don’t give up,” and shining a light when I needed it, I might still be wandering aimlessly in the dark.
I remember those dark days when I almost lost hope. It was lonely and frightening. I was in so much pain and the days seemed to drag on. There weren’t enough pills or ice packs to soothe my aching head. It felt as though everyone had turned me away, that I was beyond help.
When I finally summoned the courage to try one more doctor, it still felt as though she was was my last hope. I was so desperate for relief. The fear of being turned away still loomed like the dark tower of Mordor. When she told me it would be six months between appointments, I almost cried. It felt like I was being left to die. How was I supposed to cope with near-daily pain, waiting it out for six months?
Yes, I was catastrophizing. I knew it then, but could not stop the emotions. Severe pain is not compatible with reason. Fortunately I am not wired for long bouts of self-pity. Eventually I got fed up with being jerked around and finally began a serious pursuit to find a true headache specialist. Anger served me well for a time. It gave me the fire I needed to take action.
Eventually I found relief. The darkness finally subsided. Although it wasn’t without help from advocates who led the way. Because they led the way for me, I can do the same for others. Everyone deserves to find relief from the relentless grind of chronic migraine. I don”t want to be a hero or a martyr. I just want to be open when someone in need crosses my path.
The Migraine and Headache Awareness Month Blog Challenge
is organized by the American Headache and Migraine Association.
#MHAM, #MHAMBC, #migraine, #clusterheadache, #chronicmigraine