Support from our migraine-free friendsLast Updated:
I got yesterday’s and today’s prompts mixed up, so here’s my response to the prompt from the 14th. The prompt is the poem, Dark World that questions who will stand up and support those who cannot help themselves.
So I wonder, who will change the way the world thinks about migraine and other headache disorders? It’s not enough for patients to commiserate among themselves and offer support. We need support from the healthy. We need your voices to join ours.
What will you do…
when your sister says she can’t watch your children?
when your best friend declines an invite for the fourth time?
when your secretary calls in sick for the second time this week?
when your co-worker asks you to ease up on the perfume?
when that woman asks about the ingredients in the dish you brought to the potluck?
when your son wakes you at 3:00 a.m. begging for a ride to the ER?
when your wife is too sick to cook dinner for the third night in a row?
when your cousin leaves the party early?
Will you respond with compassion or frustration? Will you support our needs or undermine our health? Will your loved one be able to hear the disappointment in your voice?
Migraine patients need the same kind of support offered to patients with cancer, heart disease, diabetes, MS, or any other serious health condition. Many of us are home-bound and unable to drive. During an attack we are completely disabled — just getting food and water is an insurmountable challenge. Making meals, watching our children, offering us a ride, accompanying us to doctor’s appointments — these are all practical ways to support a friend with migraines. We don’t like to “be a bother” so we rarely ask for help. However, there are some practical ways you can help.
I know you feel helpless and awkward. So do we. Please help us break through the limitations of our illness by showing us how much you care. If you are unable to offer practical support, we still appreciate a phone call or email. This disease shrinks our world. We often feel isolated. Loneliness is an ever-present feeling. Letting us know you care can mean the difference between us staying in the fight or giving up.
The 2014 Migraine and Headache Awareness Month, is dedicated to Dreaming of a World without Migraine and Headache Disorders. The 2014 Migraine and Headache Awareness Month Blog Challenge is a project of American Headache & Migraine Association.