The biggest challenge has been finding a doctor who understood both #migraine and #clusterheadaches well enough to be an effective treatment partner.
There’s an art to managing multiple headache disorders. A good attitude is vital. Only when we take charge of our own health can Migraine and Cluster Headache symptoms began to improve.
We have a tendency to wear emotional and mental blinders, forgetting that the rest of the world is suffering so much more. It’s easy to get caught up in our own problems and lose sight of the big picture. We complain about the limited number of headache specialists and the high price of treatments, but it could be so much worse.
Now that I know migraine is a neurological disorder, the weird symptoms make sense. There are biological reasons for all of it. This knowledge is a good thing. By recognizing the symptoms I no longer question my sanity or blame myself for non-existent character flaws that are really just symptoms of the disease. My self-esteem & confidence improved when I got educated about migraine.
There is no one-size-fits-all Migraine. Sometimes a patient will have symptoms that are so unique to appear as though it is not migraine at all. Perhaps you have migraine or know someone who does. To borrow a phrase from autism advocacy…If you’ve met one migraineur, you’ve met one migraineur. That’s how different we are. Even if you didn’t count our personalities, talents, weaknesses, family history, social environment, and all the things that make everyone unique we’re still an ecclectic group.
A lot of people call Migraine an “invisible illness.” I disagree. It is most certainly not invisible. The problem is that there is not enough awareness about the condition. If more people understood what it is to live with Migraine, then many would recognize the signs. It is not “just a headache”, and inconvenience, or nuisance. It is a serious neurological disorder with no know cause and no cure. There are symptoms all the time, not just during an acute attack.
Darkness enveloped the room. A halo of ice packs barely dulled the pulsating throb inside my head. The active volcano in my stomach churned, threatening to explode each time the smell of burning sulfur hit my nose. “BOOM!” Sounds, lights, and smells assaulted my nervous system like exploding missiles. Surrendering had been in vain. There was no escaping fireworks on July 4th.
Today’s prompt inspired me to share a message with migraine advocates & aspiring advocates. Helping others have hope requires empathy and validation.
When it feels like all is lost, like the light is gone forever, I write. Writing gives me a sense of hope and purpose.
I could sing this song with passion and really sell it. I would be kidding myself though. I trade trigger avoidance for winning and end up the loser.