There are a growing number of questionable, unproven treatments. Desperate for relief, many of us will seriously consider one or more unproven treatments. At best, we will get lucky and find some relief. At worst, they may create harm or delay us from getting proven treatments.
There is no shortage of people trying to capitalize on the increased awareness of migraine. False claims of a cure are all too common and tempting. It’s an ugly result of greater public recognition. The more we talk about migraine, the more questionable claims will pop up. Migraine isn’t the only disease that is a target.
We have a tendency to wear emotional and mental blinders, forgetting that the rest of the world is suffering so much more. It’s easy to get caught up in our own problems and lose sight of the big picture. We complain about the limited number of headache specialists and the high price of treatments, but it could be so much worse.
My experience was foreign to them and they never did understand. Some were even cruel in their responses. Migraines made me an outcast with my new family. I wish that I could set them straight. I wish that they would listen and try to understand life from my perspective. After all, they seem like reasonable people. If they only knew the truth.
There is no one-size-fits-all Migraine. Sometimes a patient will have symptoms that are so unique to appear as though it is not migraine at all. Perhaps you have migraine or know someone who does. To borrow a phrase from autism advocacy…If you’ve met one migraineur, you’ve met one migraineur. That’s how different we are. Even if you didn’t count our personalities, talents, weaknesses, family history, social environment, and all the things that make everyone unique we’re still an ecclectic group.
We didn’t have much to work with — just aspirin and Advil. The idea of preventive therapy or more aggressive abortives were ideas I wouldn’t be introduced to for at least five more years. I had learned enough to know that I needed to treat an attack at the first sign of trouble. Nobody knew about the risks of medication overuse.
Migraineurs have an acrimonious relationship with our own brains. We see our brains as the cause of our troubles, an enemy to be defeated (or destroyed). After all, we are told that it is within our brains that all the trouble starts. Neurotransmitters, coritcal spreading depression, overactive pain receptors, hypersensitivity to stimuli…it all happens in the brain.
“Cutting off your nose to spite your face” happens when we focus on being right or fair despite the negative personal consequences. For migraineurs, there are a lot of opportunities for this to happen. Right or wrong, fair or unfair, sometimes we have to play by someone else’s rule in order to get what we want. It can be difficult to swallow our pride and do what is effective in order to get what we want.
Most people spend their days on “automatic pilot” not really paying attention. We often engage in one activity while our mind is focused on something else. We think we can accomplish more by doing several things at once. This is simply not true. When we bring our whole being into focus on one thing at at time, we are more productive. Sometimes we must quickly switch from one activity to another. The key is to give your full attention to each activity only when you are doing it.
Just as the workday was ending heavy thunderstorms rolled into town yesterday evening. Soon tornado sirens sounded the warning to take shelter. Without any drama, anxiety, or stress, I picked up a few things and moved to the basement where I called my husband and kids to check in. About the most dramatic event was discovering water leaks in a few places near the baseboards. Moments after my husband arrived home, a second siren signaled the “all clear.”