Why do I blog?
This blog, like 90% of what I do, is a labor of love. It started as a personal journal to document my search for effective migraine treatment. I didn’t really have a plan to grow my readership, improve traffic, or monetize it. My goal was simply to tell my story, hoping that it would help others.
Over the last few days, I have reminded you that more than half the people with migraine never talk to their doctor about it. Until age 16, I was one of those people. Between 16 and 25, I made a few half-hearted attempts to seek help for migraine with poor results. It wasn’t until age 25 that I finally saw a headache specialist. By that time, migraine was out of control and threatening my job and personal life. I had a lot of learning to do. Even then, it would take another 15 years before I found an effective treatment strategy.
I lived with uncontrolled migraine for forty years.
It wasn’t until migraine had ruined my ability to work and destroyed the one career I loved that I started to get relief. During that time I got an education, got married, raised two children, and tried desperately to find work I could do that didn’t make migraine worse. I’ve lost years of productive life to migraine. I refuse to waste one more minute.
No one should ever have to go through that.
So that’s why I blog, but I didn’t stop there. It will take a lot more than just one opinionated, loud-mouthed blogger to change society’s view of migraine. So I teamed up with like-minded patients and doctors from all over the country. Together we speak with one voice. Our goal is simple — change the way the world sees migraine. When that happens, there won’t be a shortage of doctors or lack of research funding. Everyone will make migraine a priority.
I use my talents for the cause.
In addition to maintaining this blog, I also write for Migraine.com and swap posts with other headache disorder bloggers.
More recently, I was invited to join the board of directors for The Cluster Headache Support Group. As Sr. Vice President, I assist in strategic planning and daily operations of this highly successful online support group. CHSG is also active in shaping healthcare policy and research as they relate to cluster headache.
Then just last month, I was elected to serve a 2-year term as Vice Chair of The American Headache and Migraine Association (AHMA). Think of AHMA as migraine’s version of the American Heart Association. It exists as a patient advocacy group to provide education and support to patients and their caregivers. It’s my job to lead in the recruitment and retention of members. Membership is open to anyone diagnosed with any type of headache disorder, not just migraine. Caregivers and family members are welcome, too.
We also support fundraising for migraine research. One of our larger initiatives is the support of Runnin’ for Research. Now in its fourth year, Runnin’ for Research takes place each fall in three cities. My hometown is hosting our first race this year.
Help me spread the word.
- Share these posts on social media. You can find me on Facebook, Twitter, Google+, LinkedIn, Pinterest, and About.me.
- Subscribe to the newsletter and register to participate in the forums.
- Purchase an awareness t-shirt. All profits go to help headache disorder patients in need.
- Register for the race, even if it’s just “virtually” (yes, that’s real!) to help us find a cure.
- Ask questions.
- Learn something.
- Become a headache and migraine ally.